In February 2003, Alex Jr. Kamusoko complained of a stomachache. We discovered the reason for the stomachache was because his stomach was hard and solid. We rushed him to Eggleston Children’s Hospital, and a large mass was noticed by the Er doctor. A biospy report confirmed that Alex Jr. had a rare but deadly type of cancer, called Desmoplastic-round small cell tumor. After numerous rounds of chemotheraphy and radiation, a final attempt to remove the tumor was made. It was unsuccessful because the tumor was surrounded by vital nerves. The doctors deemed the operation too risky to continue. Alex Jr. Kamusoko lost his battle in May 2005.
Hence, in March 2006 the Alex Jr. Cancer Foundation was established. Our greatest desire is to discover a cure for this rare form of cancer. We also want to raise awareness in the community, especially among minority families, with young children diagnosed with cancer.